|Special Guest Article about Morgellons Support Help 3/24/19|
Unique Support Group For Skin Parasites Helps Patients Heal”
By: Cheryl Gordon
A note from the author: This is the first of a series of investigative articles I am writing for Richard Kuhn’s blog. I have many topics in mind, and as science gets closer to finding answers, perhaps they will change along the way. I am a former sufferer of chronic illness, including parasites, and still struggle with many issues, but I have used Richard’s products, his diet, and his protocol, and have found it to be effective. Over the course of the next year, I’ll release a series of articles delving into many topics, including a deeper look into some of the diseases discussed in Richard’s book, including Morgellons’s, the many theories on the origins of these illnesses, and a more in-depth discussion of Richard’s protocol, his story, and mine as well. Do check back with us for follow-ups! Anyone interested in contacting me with either a testimony or how you’ve healed using Richard’s methodology, please contact me at email@example.com, or follow me on my FB page BeYourOwnHealthAdvocate@beyourownhealthadvocate and/or Pinterest at http://www.pinterest.com/beyourownhealthadvocate/, and please be on the lookout for more articles!
Hippocrates said “Make a habit of two things: to help; or at least to do no harm.”
3:50 pm, Eastern Standard Time. I sit on the phone with Kristy anxiously awaiting my 6th attendance of the telephone support group entitled “Let’s Heal Together,” a conference call accessible worldwide dealing with one of contemporary science’s most controversial topics: skin parasites. Specifically, one of those parasites, known by its victims and supporters as Morgellons disease, is one of the hottest-for many doctors and scientists-too hot of a topic to even discuss or prescribe treatment. In fact, this is the case with many other skin parasites as well, and with the medical and scientific communities, not to mention the CDC’s, refusal to weigh in…..then, where does that leave the sufferers?
Well, for a small but steadily growing number of victims, it leaves them here, with me, at ten minutes to four, Eastern Time, waiting for a conference call that is the support group for the sufferers of Morgellons and other skin parasites.
Kristy and I have never met face-to-face. We met through the “Let’s Heal Together” group, founded by Richard Kuhns, B.S., CH.E, and best-selling Amazon author of “How To Get Your Life Back From Morgellons and Other Skin Parasites,” in my humble (but well-versed and researched) opinion, is one of the most comprehensive books published on how to help you “get your life back” (because they really do steal your life) from one of the many often-termed “invisible illnesses” that fall into the lump category of skin parasites.
Richard (he just goes by his first name in the group setting) sees the support group as a crucial add-on to his popular “King Diet” and supplement protocol (which we’ll go into later) outlined in his book. “Sufferers of Morgellons and other skin parasites are totally focused on their extreme discomfort and fear of what the future will bring since the medical community offers them no support or recognition,” he tells me. “Many are afraid that the parasites will kill them and often consider suicide.”
3:55 pm Eastern Standard Time. I can hear Kristy itching through the phone. I know her well enough to know the subsequent rustling noise I hear is her shuffling through her purse in search of her microscope. Most people find them on Amazon-they’re not terribly dissimilar from the kind most dermatologists carry on them at all times. (I imagine the Amazon version may be a bit cheaper, but still able to function at 90x magnification.) It’s common to “scope” your skin when you suffer from these types of illnesses, because your doctor won’t.
In fact that’s why Richard originally started this group.
Richard tells me his initial thought for the group would be a place for people who have been double abused, meaning their doctor diagnoses them with delusional parasitosis (a common occurrence) and their family believes the doctor's diagnosis and disowns or abandons them leaving them abused by both the doctor and their loved ones who should be their main line of support.
“In spite of hearing the scenario of being double abused by many, very few actually participated in the group,” he says. Interesting, I think to myself, as many have voiced their frustration with these issues to me on a private one-on-one call. It takes quite a bit of vulnerability to fight through the shame of the double-abuse scenario and voice it to a group. (We’ll get more into that later.)
Kristy doesn’t know whether she actually has Morgellons, or another skin parasite entirely. She’s had to leave her house, moving to five different hotels in the last month, while trying to simultaneously continue to work, not infect her children, her co-workers, the hotel room she leaves behind after each move-I don’t envy the tremendous toll this has taken on her both physically and emotionally. She has been to see five different physicians, including dermatologists and infectious disease doctors, none of whom even took the fore-mentioned microscope out of their pocket to even examine her skin, before finally finding a functional medicine clinic near her home. This weekly support group is her saving grace.
There is so much to say about skin parasites. I could spit out facts and numbers, some of which I will, but this particular piece is about the support group, how its structured, what kinds of feelings are expressed by its sufferers, what emotions they have, how it feels to be met with skepticism or even outright rejection, and what it does to help the victims of these insidious infections.
In this article, you’ll learn more about the support group, and how it’s structured, and you’ll hear more about my friend Kristy’s story. After that, I’ll reveal more of my chat with the man behind the scenes who makes this all happen, Richard Kuhns, and I’ll briefly tell you a little about his protocol and more about the many symptoms diagnosed by conventional doctors as a “delusional parasitosis” affliction.
Finally, we’ll dig into the mixed bag emotions the victims of this happenstance condition are left holding, when doctors, scientists, the CDC, and even, in some cases, their own friends and family, simply abandon them.
For those of you who don’t think skin parasites could be that big a deal, in Richard’s book, “How to Get Your Life Back From Morgellons and Other Skin Parasites,” he says:
“Without guidance in an effective treatment, the parasites can reside in one’s skin for years and make scabies (a form of mite) look like common cold. Likewise, some skin fungus can result in fungal infections that last for years, and, unless effective treatment is found, lead to death.”
You might be saying to yourself, hold on, fungus? Yes, believe it or not, fungus can parasitize, and not only that but, Lyme disease, Candida, and even Collembola are all encompassed in that broad term of “skin parasites,” and each of the above-mentioned illness, symptoms, and treatments are all covered in Richard’s book. And sufferers of ALL these conditions are welcome to the support group.
Think about it. If it was you, who would you turn to? What would you do next? Think it couldn’t be you? Most people in the United States do. Think again.
In her YouTube video entitled Intestinal Parasites 101:Inside a Hidden Epidemic, parasite expert Ann Louise Gittleman, Ph.D., CNS says: “The chilling reality may very well be that eight out of ten of us are suffering from one or more microscopic vampires or even larger critters.” You might be saying to yourself, did she just say intestinal parasite? I thought they were skin parasites? Yes, it may seem far-fetched or even outlandish, but intestinal parasites like Strongyloides Stercoralis, left to their own devices long enough, can absolutely cause skin symptoms, among many others. Not to mention, once ANY of these guys penetrate the dermis and become blood-borne-well, all hell can break loose.
Dr. Gittleman goes on to say that United States researchers have found “over 130 different invaders that can account for over 385 various diseases.” “They are not only an inconvenient truth, but as far as I’m concerned, they’re one of the most unrecognized and neglected diseases of our time.”
Still not convinced? Still thinking fake news?
Well, even the CDC agrees (on paper, at least.) According to an article released by the CDC May 8, 2014, entitled "Parasitic Infections Also Occur in the United States ,” the first paragraph reads: “Many people think parasitic diseases occur in poor and developing countries, or are infections they might pick up on a trip to a foreign country. However, parasitic infections also occur in the United States, and affect millions of people, often then go unnoticed and with few symptoms. But many times, the infections cause serious illnesses, including, seizures, blindness, pregnancy complications, heart failure, and even death. Anyone-regardless of race or economic status-can become infected.”
And one more: The CDC’s current statistics raised the number of people yearly infected with Lyme disease last year from 30,000 to a stunning increase of 300,000!!!
So I ask you again? What would you do? In the face of doctors turning their back on you, family members thinking you’re crazy-would you give up, and suffer in misery for what seems like a never-ending purgatory, or would you, like the remarkably free spirited, strong-willed members of this support group, go on an infinite quest of self-knowledge, spend hours on research, educate yourself, and even put your faith, and possibly your destiny, in people you’ve never met-in order to “get your life back?”
I would. I did. Hence, I met Kristy.
3:57 Eastern Standard Time. After spending over $3000 trying to “clean” the rental she lived in in New Jersey, Kristy tells me she finally found a small one-bedroom in New York for her and her children to move into, because despite what the pest control people continually say, the place is still infested. After constant itching, long nights awake, hiring expensive pest-control, she’s finally had enough. It will be a commute to her job, but since her illness, she’s become an unwitting outcast at work, and that promotion she was hoping for before Christmas (of 2018, when she was first infected) is looking less and less probable. The awkward environment resulting from her having to frequently clean her skin, disinfect her desk, and quarantine her coat, has caused some remarkable animosity amongst her co-workers. This isn’t a new story to me. Unfortunately, despite the fact that parasites can render your immune system completely defenseless, cause multi-systemic issues and basically ruin your entire life, often this isn’t enough to elicit much empathy from those who insist on remaining ignorant. Most doctors today diagnose these people with what’s known as “delusional parasitosis.”
So, what are the symptoms of this enigmatic, vicious virulence? Well, they vary. But here’s a list of the most common ones taken directly from “How to Get Your Life Back From Morgellons and Other Skin Parasites.”
Symptoms of Itchy Skin Parasites, Collembola, Stronglyoides, Lyme and/or Morgellons:
Non healing lesions/sores - Fibers/filaments growing from skin - Intense itching of the skin - Stinging or biting - Hair Loss - Chronic Fatigue - Cotton-like balls - Brain Fog - Hard nodules under skin - Fibromyalgia or joint swelling and muscle pain - Lower Body Temp (96 degrees) - Something invisible jumping onto ankles or lower leg—even the face - Strawberry spots on skin - Black or brown specks on the skin - Organisms coming from the skin - Sleep disorders - Sand-like granules coming from skin/bedding/on floor - Cotton-like or lint like substance in clothing/bedding - Spider grayish-like veins under the skin - Insects/bugs coming from skin – Black goo coming from your skin – Biofilm.
Untreated Physical and Mental Symptoms From These Parasites Can Accelerate To:
Visual Impairment - Disintegration of Teeth - Mental Symptoms - Neurological Disorders such as Parkinson’s disease – ADHD - Mental symptoms can include bipolar behavior - Anxiety and panic attacks - a whole host of psychological disorders depending on one’s disposition.
Wow! That’s a pretty serious list right there. It’s hard to imagine that all these symptoms wouldn’t be taken seriously by a physician. But in most cases, the truth is, they aren’t. Takes me back to Hippocrates, whom I quoted on the first line of this article: ”At least do no harm…?” This is one of the reasons it’s been so difficult for Richard to get his message out.
Despite devoting himself to the study of these organisms for over twenty years and writing the most comprehensive book ever written on skin parasites, he says “I’m not an M.D. And even though most doctors deny the existence of Morgellons and Collembola and even the few that know a little about Morgellons are totally in the dark about how to help their patients. The fact that I’m not a doctor puts me in the lay, disrespected group.”
It doesn’t help that parasite testing is still in its infancy in many laboratories in the United States. Dr. Christopher Shade, Ph.D., and founder of the Quicksilver supplement brand said in February of 2019’s Immune Defense Summit about parasite testing: ”This is the worst testing available to us right now, worst in terms of the amount of false negatives. (We) miss parasites left and right.”
According to chronic illness expert Dietrich Klinghardt, M.D., Ph.D. and owner of Washington’s hugely successful Sophia Health Institute, some parasites “can only be detected in fresh stool for about 20 minutes. None of the labs available to us comply with this necessity.”
He goes on to say: “The detection rate is so substandard, only an experienced practitioner is capable of establishing the diagnosis.”
According to “How to Get Your Life Back From Morgellons and Other Skin Parasites, in a study done regarding the accurate number of “delusional” diagnoses’, only 10 percent were actually proven delusional, but the other “90 percent of those classified as ‘delusional’ did indeed have a parasitic infection.”
In “A Deep Look Beyond Lyme,” written by popular podcast host Scott Forsgren, otherwise known as BetterHealthGuy, almost a decade ago, world-renowned parasite doctor Simon Yu, M.D., said, “Most parasites are outside of the intestinal tract. They are deceptive, adaptive, and difficult to eradicate.” (They) bring bacteria, viruses, and fungi with them.”
And that was eight years ago! While these bugs are adapting and evolving, simultaneously, we’re lagging behind! I am aware that a handful of labs scattered around the country have made a conscious effort to step up the credibility of their stool testing, but the truth is, the majority of the county is still missing the mark. The tests, and sometimes the technicians themselves, are inexcusably inadequate.
Blogger and functional medicine doctor David Edelberg, M.D., even admits this in a post on his clinic’s site, www.WholeHealthChicago, albeit rather sheepishly: "Unfortunately, most lab technicians assigned to poop examination are not well-trained in checking for them. It’s likely a reasonable percentage of patients written off as irritable bowel syndrome actually have an infection with one of these (parasites.)”
As Richard always says in the weekly emails, these parasites are serious: they’re as fierce and ferocious as any other life-threatening illness. “The only difference is,” he writes. “You have doctors to depend on for the other diseases, and with Morgellons (and all the others) there is no doctor to depend on.”
I often wonder why that is. When will our suffering be considered “real” enough to fight for? I haven’t got my answer yet, but that doesn’t mean I’m going to stop fighting. That’s why we’re all gathered here today.
4:00 Eastern Standard Time. Margie’s now familiar voice comes on the line. “It’s a pleasure to be here tonight with all my fellow healers,” she says in her melodious, soothing tone. Margie is the leader of the group, and she brings different topics every week including affirmations, journaling, meditation, self-hypnosis, prayer and humor to help relieve the stress of dealing with these virulent pests.
As Margie goes on to explain the rules, including confidentiality and no advice-giving, she also explains that one object of the group is to find a buddy for the week, and she asks everyone who speaks if they want to leave their phone number. This has been invaluable for Kristy and I, and also many others, I am certain.
Despite Richard’s initial interest in the double abuse scenario for the group, he explains: “Much to my surprise, Margie was in one of the first meetings and expressed an interest in participating. Her focus was a bit different than mine in that she shifted the group into a self-help group aimed at reducing the effects of stress to facilitate healing and recovery.”
In Richard’s weekly email reminding the group members about the meeting, he always acknowledges he realizes new members may regard Margie’s portion of the meeting as “a waste of time,” instead seeking only a quick answer on how to “beat the disease.”
“Nothing could be further from the truth,” he goes on to say. “The tools that Marige introduces are highly instrumental in beating any major disease. These tools combat stress and it’s impossible to have skin parasites and not have stress.”
That’s 100 percent correct! Stress, which creates hormones such as cortisol, that the body then converts into sugar (Sugar, in ALL forms, is number one on the diet’s NO-list,) can wreak havoc in a person with Morgellons, Collembola or Candida. Basically, along with the diet, these are the tools stock in your toolbox. (Toolbox-a metaphoric device that can mentally reach in, pull out, and utilize whenever you’re facing a moment of crisis. And if you’ve unfortunately become a host to these pests, you WILL have those moments.)
The toolbox may be imaginary-that is, just a creative psychological technique-but the tools-the REAL tools that Margie and Richard teach are genuine, tangible solutions that WILL help you regain your life.
The second part of the meeting is dedicated to the participants getting the opportunity to ask Richard questions about the King Diet or the supplement protocol, or to talk about their experience with it.
The King Diet is a specialized diet developed by Richard over the course of ten years of triumphs and failures experimenting with different foods that he found either activated the parasites, or kept them neutral.
“I found this diet by trial and error through doing an elimination diet. I started initially by eating only eggs--nothing else--no oil or butter with the eggs--and noticed the symptoms (the itchy biting all over the body) had practically disappeared within hours, at which time, I really became interested in learning more about diet,” he says in “How To Get Your Life Back From Morgellons and Other Skin Parasites.” The King Diet protocol, however, is basically a three-prong approach. It consists of:
If you’re interested in learning more about the protocol, I recommend purchasing Richard’s book on Amazon, “How To Get Your Life Back From Morgellons and Other Skin Parasites.” For a nominal fee, you get a literal-and I do mean LITERAL, STEP-BY-STEP approach to help you clear yourself from these parasites. It’s a wealth of knowledge, in fact, so much so that I’ve read it 3 times, some parts I’ve even read 5 or 6 times! You can also obtain the ebook version fro free by going to www.BestMorgellonsCure.com
To accelerate progress, he recommends specific supplements to rebuild one’s health and immune functioning.
Now, most people facing a health crisis are just searching for that perfect medication or supplement to swallow in order to make their symptoms go away. And that’s a whole other article entirely, so let me just say this: I am not going to keep you guys in suspense: I AM going to give you the list.
However! A (BIG!) word of caution: DON’T JUST GO AND BUY THESE SUPPLEMENTS AND NEGLECT NUMBERS 1, 2, and 3 OF THE THREE-PRONG APPROACH. YOU CAN’T JUST TAKE THE PILLS AND EAT WHATEVER YOU WANT AND NOT LEARN HOW TO CLEAN YOUR ENVIRONMENT AND SKIN EFFECTIVELY.
Please don’t dismiss that disclaimer! As long as you’re compliant with the three-prong method listed above, what I’m about to give you is worth its weight in gold! Here it is: the list of the basic four core supplements Richard recommends:
We’ll go much more in-depth with this potent arsenal in another article. These are ones you definitely want to keep in your fore-mentioned toolbox!
4:15 Eastern Standard Time. Getting back to the telephone support group, here’s what I think is so great about this support group. It’s a place for everyone to discuss the entire approach as a whole, to share with others what works and what doesn’t, to open the lines of communication for these unrecognized, undiagnosed, and unfairly labeled patients who are clearly suffering from something-and just because their doctors don’t know what it is doesn’t make them delusional.
As I mentioned before, the CDC doesn’t even recognize chronic Lyme as an illness, but it does acknowledge that 300,000 people are contracting it newly every year. Surely at this point you’re thinking, isn’t 300,000 Lyme infections a pretty big number? Surely they must be taking notice now and implementing proper programs, and such, right? Well, to put that in perspective, in 2017, almost 39,000 people contracted HIV, the virus that causes AIDS.  So 40,000 vs 300,000. A pale comparison, yet the answer is no, no-one is implementing anything, in fact, quite the opposite.
I've been writing about Lyme disease and you might be wondering what the connection is between Lyme disease and Morgellons. The answer lies in the researach:
Richard addresses this in his free report, "Lyme Doesn’t Have To Own You Anymore.”
He suggests a quick comparison of Lyme to cancer. “There are cancer hospitals everywhere," he says, which is obvious to most of us. But then he asks, “Where are the Lyme hospitals? Go ahead and Google ‘hospitals specializing in Lyme.’ You get a few clinics and a few alternative specialists—that’s it.”
This is sad but true. Not only is it sad that most doctors who treat Lyme disease specifically work at cash-only medical facilities typically not covered by insurance, what’s also sad is that unless you know someone or you yourself have been personally touched by Lyme, it’s unlikely the phrase ‘hospitals for Lyme patients’ has ever even crossed your mind. And for those with Morgellons or other novel, little-known, or “doubtful” parasites, the list gets even thinner.
He ends, grimly: “Where do you get an accurate diagnosis? Answer: As previously discussed, you don’t.”
Whether it’s Lyme or Morgellons, Collembola or another itchy skin bug, victims of parasitical infections are repeatedly met with the same skepticism, and are generally ignored until things progress to a point that their health is endangered, something stops working in the body, something significant enough that a doctor HAS to take notice.
“Do no harm,” right?
4:30 Eastern Standard Time. Margie asks if we have used any of the coping mechanisms discussed in the prior meetings this week to deal with our symptoms. She reminds us, “Any physical recovery, it’s never a vertical line.” She always emphasizes that with chronic illness, there are always ups and downs: that our recovery will never be a straight line, it’s always going to bend and curve, sometimes even make a U-turn, and we’ve got to stock our toolbox, get it out, sift through it, and find the right one to utilize.
“Humor helps me sometimes more than my faith,” a woman I’ll call Barbara chimes in.
“If I feel anything, I freak out,” says another survivor I’ll call Jason. “It’s probably just my paranoia.”
There is definitely an aspect of PTSD to these illnesses, and it’s palpable, even over the phone.
I recently spoke with a Morgellons victim I’ll call “Joanie.” All the doctors have told her she’s fine, her labs are fine, or referred her to psych. She doesn’t know what to tell them anymore. Her symptoms are too bizarre. Even her kids are skeptical. Sometimes she questions her own sanity.
The effect of rejection by one’s family can be emotionally devastating. I recognized that slight edge in her voice. It’s vulnerability. And it’s shame.
5:05pm Eastern Time. The meeting is over and it’s time for “the hallway.” This is where you can leave your number if you haven’t already, and also ASK for someone’s number you especially related to during the meeting. This is the most vulnerable part of the whole meeting. This is where you have to put yourself out there and let people know that you need help.
On a post from one of my favorite blogs, Countingmyspoons, Julie has a beautifully written piece called “At the risk of being vulnerable.” These people, like Julie, who has another “invisible illness,” Fibromyalgia, the members of “Let’s Heal Together” just want to be validated. Their pain is real, and their basic human desire to be comforted when hurting isn’t being met.
As Julie says: “I just want someone to ask the right question. I want someone to see that I need help, but my mask works too well…at least that’s what I have to believe, because if it didn’t work so well they’d see that I need help. They’d ask how they could help me. They’d offer to listen.”
Vocabulary.com defines shame as “a painful feeling that’s a mix of regret, self-hate, and dishonor.” Wikipediastates, regarding the same topic: “The focus of shame is on the self or the individual.”
It’s horrible to have to be ashamed of a legitimate, physical condition. As I quoted above, the CDC actually does say that parasites are real, even life-threatening-but only on paper. In reality, doctors completely ignore Morgellons and Collembola, and only marginally treat certain other parasites.
Richard, who has been in touch with literally thousands of sufferers, tells me regarding Morgellons: “Morgellons is a disease that isolates its victims, often times with unsightly lesions. Friends disown you. Careers and jobs are lost. Homes and apartments are lost resulting in depression, suicidal thoughts and one feeling like a leper.”
When you’ve experienced some of the bizarre symptoms described above, and you’ve been ridiculed, you’ve been cast aside by the people that are supposed to care about you, be they doctors or family members- and from the many victims of skin parasites I’ve spoken with, I know these are real-life, every- day occurrences, it takes courage to overcome the shame that society has inflicted on the word “parasite.” It’s takes a special kind of bravery, a strong resolution, and a certain amount of good, old fashioned guts to stand up and say “I need help. Can somebody give me a call?”
Liked this article? Wondering about the origin of some of these strange afflictions? Want to hear more about the diet, the protocol, Morgellons, or my story? Keep an eye out for this and in the meantime, go to www.BestMorgellonsCure.com...